Happy summer

I’m having a pretty low-key summer. My mom and younger brother are ditching me and my dad to go spend almost 3 weeks in Germany. My brother’s been studying German since 6th grade and my mom studied for a semester in Germany a really, really, long, long time ago. Mom, could you please bring me back some World Cup Germany Futbol socks!

Other stuff happening this summer

Some Sports

FIFA World Cup Russia 2018 logo

I’m having an awesome time watching the World Cup. Thrilling. Exciting. Nail-biting.

I am a huge fan of AFC Wimbledon so have been following them online. They are a fan-owned team.

Some Medical Stuff

I just started trying out medical marijuana and will let folks know how it’s going in a month or two. The hope is to reduce pain in my knees, hamstrings, and hips and calm involuntary, jerky movement and muscle spasms. Minnesota has approved the use of medical marijuana.

Some Writing

Continuing to write my action-packed, mystery, romance novel. I’m on page 86. I’m going to get a bunch done when my mom and brother are on vacation.

Some Politics

The Minnesota Primary is coming up on August 14. I am going to volunteer for the candidates I support. If you live in Minnesota, remember to go VOTE! It’s important! If you’re not around on August 14, you can vote by mail or in person through August 13. Check out more information about voting at the Secretary of State’s website.

Some Ideas for the Future

My dad and I are going to go tour Augsburg University on Wednesday. I have been taking classes at Century College, a community college near where I live. I’ve heard really good things about Augsburg and would like to see if it might be a good fit.

Don’t forget to be awesome!

Thank you, Dad!

People may not always realize that family life might look a little different when someone in the family has a disability. My dad has been there for me from day one and is not only my dad, but also my main caregiver. He has been home full-time for the past 2 years. During that time, we’ve been figuring out how and what I need to live as an independent adult. He was there with me through every weekend of Partners in Policymaking. He even got to be my helper at college when we couldn’t find a daytime personal care attendant.

Justin in wheelchair, dad holding Justin's foot

My dad fixes and troubleshoots issues with all of my equipment – from wheelchair, to communication device, to shower chair, to wheelchair lifts and ramps. He’s the best cook ever. Seriously, his homemade pizza is amazing! He is there for me for all medical appointments and holding tight during some of my scarier and more painful stays in the hospital. Over the years, he has carried me to the tops of fire towers, lighthouses, onto sandy beaches, swimming in oceans, to wheelchair-impossible corners of Yellowstone and other parks to see waterfalls or other natural wonders – he would make sure I got to experience everything I wanted to experience even when there were barriers in the way.

Dad holding Justin on beach by young boy

I think sometimes people assume that moms are doing everything… in our family, it’s always been both of my parents working together and holding on tight as we go through all the curve balls that life throws at us. I am so lucky to have such loving parents.

Justin in gait trainer giving high five to his dad on accessible baseball field

On this Father’s Day, I am holding on to love and letting my dad know that even though it’s not always very easy, and it may not be the path he had expected, that what he does each and every day rocks. I am who I am today, because he has been there for me through all the crappy times and through the awesome times. I love you, dad!

Adjournment

My first time as a delegate to the State Democratic Farmer Labor (DFL) Convention was definitely exciting and suspenseful! I met some amazing people and loved seeing the political process in action.

Thanks to ABC-6 in Rochester for noticing my blog, reaching out, and then sending a wonderful reporter, Noelle Anderson, to interview me about my experience as a first-time delegate. Here’s the link to the DFL Delegate Strives to Give a Voice to Those Without One report from ABC-6 KAAL-TV. Enjoy!

Justin with reporter Noelle Anderson smiling

(ABC 6 News) — There are 3,000 extra people in Rochester this weekend for the state DFL Convention. Half of those are delegates.

One of those delegates is Justin Smith, a public speaker, blogger and disability rights advocate. He’s only 19 years old, and he’s already become a leader for people with disabilities.

“It is important for me to make my voice heard, and show up and to be an advocate for the change. That’s why I am a delegate,” Justin said. “It’s important that people with disabilities are included in meaningful ways. That includes being involved in the political process.”

Justin lives with Athetoid Cerebral Palsy. He uses a communication device to talk, and that device, as well as his power chair, comes at a cost, which is why he’s advocating for support, to make sure anyone who needs technology and care- gets it.

“He’s able to share his unique perspective on how we can all make this work better. He needs support and full-time staff and health care and special equipment, accessible technology. Technology is key for this kid. It’s his independence,” said Kris Schulze, Justin’s mom.

Kris and Justin smiling

“There have been real threats to medical assistance and health care which mean very real threats to people with disabilities. We need more options for self-determination. I want to live with as much choice and independence as possible. Isn’t that what anyone would want?” Justin explained.

Justin says one in five people in America have a disability and one in four 20 year olds will have a disability before they retire.

“I am terrified that many of us with disabilities who need Medicaid will lose our freedom to choose how to live our lives. This support matters. It helps me make an impact on the world,” Justin said.

This leadership role isn’t new for Justin. Last year he was featured in Microsoft’s Inclusion in Action Video series.

Justin also has his own blog called Justin Smith Writes.