Ready for AFC Wimbledon, Art & Writing

Six days till the new season

We get to play seven new teams this year. As many of long-time readers know, I LOVE AFC Wimbledon football (aka soccer). Love the idea of fan-owned teams and the story of the club. Excited for the new season and going to The Local in Minneapolis to watch some matches.Justin watching tv in pub

Art

Hung out at the Minneapolis Institute of Arts on Friday – very accessible and air-conditioned. I have long believed in the stories that paintings and pottery tell, shaping the world around us. Sparked some ideas for my next book and was a cool place to hang out on a hot day.

 

Justin and dad standing in ancient doorway arch

Justin driving his wheelchair in front of paintingWriting

Feel as if I’m always working on my first draft of my second book, a realistic mystery about a girl with cerebral palsy. I’m using my own experiences more in this book. This was a more draining week because I was writing about hospital experiences – they’re not the greatest life experiences…

For a break from that, I keep editing my first book, a thrilling romance with a little bit of sci-fi.

Justin driving wheelchair in art institute hallway with statues

Shoes

First time wearing cool shoes in about 8 months. Here’s my past 8 months of footwear.

Justin smiling outside in his wheelchair

Here are some pictures of my footwear and one of x-rays of the pins in my newly straightened out big toes. I started PT last Monday and working on putting a little weight on my foot so I can help out more with transfers. I still have a bit of pain (around 4 out of 10 now) but nothing like it was before the surgery (8), couple weeks after surgery (9), and the rest of the time with the casts on (6 or 7).

“Another turning point, a fork stuck in the road”

Green Day has this quote from the song, Good Riddance (Time of your Life), that I keep listening to over and over and over. I am at a turning point in my writing career, with my first book I wrote and I just can’t decide whether or not to throw it away. It’s hundreds of hours of working on this novel and let’s be straight, it is terrible. I didn’t expect that I would write a “good” first draft. Not sure if anyone is capable of writing a good first draft?

I’m having more fun writing my new book giving voice to a young woman with athetoid cerebral palsy (CP) who uses a communication device. As a young man with CP, I haven’t found many main characters who look or sound or experience life like I do. We need more main characters who speak with communication devices or use wheelchairs or whatever. I need to be able to see me or someone I can relate to in the books I want to read.

I’m also at a turning point in college. As some of you may recall from previous posts, I tried to take an online class. It didn’t go exactly well and I dropped the class. And I am at a loss as how I want to keep learning or what I want to learn about. In college, I can get CART captioning that I need during a lecture or class. If I’m taking a class at a private or community Art or Literary Center, I’m not sure that they’d have to provide CART captions. I have some research to do to figure this out.

Lastly, you know about the toes, probably. My big toes are STRAIGHT. It still is a pain in the butt, but it’s less than before. No casts, check. No pins, double check. I have PT on Monday so can start working on transfers and building my strength again so I can get back to one person helping me with transfers instead of two. Here’s a picture of my dad adjusting my foot rests to work with my cast-free feet.Dad working on wheelchair footrests with Justin's feet strapped in

Speaking of the road, we did have an overnight road trip to see my grandma and grandpa for the 4th of July. My mom wanted to spend her birthday with her parents in Pipestone. Happy birthday mom! My first road trip in a long time and it was fun hanging out with my family! My parents and I are making plans now for a big road trip next spring to D.C. and Philadelphia. I want to go to the Disability Policy Seminar in D.C. in March 2020.

This is the video of the Green Day song I mentioned from YouTube.

Also, here’s a White Bear Pioneer Press photo of the Manitou Bears that Shine and a link to the Manitou Days Facebook post about my being recognized as a Bear that Shines. That was really nice and I’m honored to be recognized!

And here are a couple pictures from our Pipestone road trip.

Grandma, Dad, Mom, Justin and Grandpa sitting around table with birthday cheesecakeJustin with his grandpa