“Another turning point, a fork stuck in the road”

Green Day has this quote from the song, Good Riddance (Time of your Life), that I keep listening to over and over and over. I am at a turning point in my writing career, with my first book I wrote and I just can’t decide whether or not to throw it away. It’s hundreds of hours of working on this novel and let’s be straight, it is terrible. I didn’t expect that I would write a “good” first draft. Not sure if anyone is capable of writing a good first draft?

I’m having more fun writing my new book giving voice to a young woman with athetoid cerebral palsy (CP) who uses a communication device. As a young man with CP, I haven’t found many main characters who look or sound or experience life like I do. We need more main characters who speak with communication devices or use wheelchairs or whatever. I need to be able to see me or someone I can relate to in the books I want to read.

I’m also at a turning point in college. As some of you may recall from previous posts, I tried to take an online class. It didn’t go exactly well and I dropped the class. And I am at a loss as how I want to keep learning or what I want to learn about. In college, I can get CART captioning that I need during a lecture or class. If I’m taking a class at a private or community Art or Literary Center, I’m not sure that they’d have to provide CART captions. I have some research to do to figure this out.

Lastly, you know about the toes, probably. My big toes are STRAIGHT. It still is a pain in the butt, but it’s less than before. No casts, check. No pins, double check. I have PT on Monday so can start working on transfers and building my strength again so I can get back to one person helping me with transfers instead of two. Here’s a picture of my dad adjusting my foot rests to work with my cast-free feet.Dad working on wheelchair footrests with Justin's feet strapped in

Speaking of the road, we did have an overnight road trip to see my grandma and grandpa for the 4th of July. My mom wanted to spend her birthday with her parents in Pipestone. Happy birthday mom! My first road trip in a long time and it was fun hanging out with my family! My parents and I are making plans now for a big road trip next spring to D.C. and Philadelphia. I want to go to the Disability Policy Seminar in D.C. in March 2020.

This is the video of the Green Day song I mentioned from YouTube.

Also, here’s a White Bear Pioneer Press photo of the Manitou Bears that Shine and a link to the Manitou Days Facebook post about my being recognized as a Bear that Shines. That was really nice and I’m honored to be recognized!

And here are a couple pictures from our Pipestone road trip.

Grandma, Dad, Mom, Justin and Grandpa sitting around table with birthday cheesecakeJustin with his grandpa

 

A couple things

Football/Soccer

My dad and I got last minute tickets and went to Allianz Field to watch Minnesota United FC vs. Houston Dynamo. We won 1-0. It’s great to be able to do more stuff now that I’m in my fourth week after the surgery.

It was too late to purchase parking online (all looked sold out) so we thought we’d see if we could find wheelchair accessible van parking in a lot near the field. It looked as if there were a lot of accessible parking spots available in the lots but since we hadn’t purchased parking online we couldn’t park there. We ended up finding a street spot where I could drop the lift about a block away. So, free parking is always good.

The stadium itself was amazing. We sat close to the Wonderwall fan area – so it was super charged with energy and excitement!

United is my favorite US team and AFC Wimbledon is still my favorite first love. Maybe someday I’ll be able to go see an AFC Wimbledon match in person! Until then, it’s United FC to watch live soccer!Justin in wheelchair looking at the field in Allianz Stadium

Bear that Shines

Guess what? I got an email that said this, this week:

“You have been selected as a 2019 Manitou Days Bear That Shines! Earlier this year we requested nominations of people who lived in our school district who have made an impact in our community, with the goal of recognizing 22 Bears that Shine (one for each day of Manitou Days). Your name was submitted with a description of why you deserved this award.”

So, if you’re in White Bear Lake on June 13th, stop by Marketfest. I, along with the other Bears that Shine, will be recognized at around 7:15 at the Gazebo in downtown. Watch for more info about this on the Manitou Days website.

I am honored that the person who nominated me recognized how I try to make an impact and be a voice for inclusion in my community. Thank you!

Recasting

I’ll be sedated on Thursday to get my casts replaced. Hoping to see my toes again and that they’ll scratch my legs before putting the new casts on! Please, scratch my legs!!! Ever notice how your legs itch even more when thinking about and writing about it?