I’m not asking for a miracle

One of the songs I like by CHRVCHES is Miracle. I’ve been listening to it over and over. And over. And over lately. I’m not asking for a miracle but I, and my parents, are struggling with what comes next. What does my adult life look like? Especially socially, because right now, I’m feeling kind of isolated.

I’ve had some great opportunities to speak at different conferences and speak out about disability rights. I’ve made some awesome professional connections. I’ve gotten involved politically and made some wonderful connections there, too.

But, day in and day out, I feel kind of lonely. I hang out with my support staff who are awesome. I don’t really have any friends that I hang out with, though. I read books and watch movies and shows about young people hanging out. That’s rarely been my world. The last time I had friends that I hung out with was with my church youth group – they all went off to college or on with their lives. How do you meet new friends when you’re not in college, you’re not working at a job, and you have a difficult time hearing and communicating?

Right now, I am not asking for a miracle. I just wish there were more opportunities for people with disabilities to meet people and feel more included.

“Ask me no questions, I will tell you no lies
Careful what you wish for
We’re looking for angels in the darkest of skies
Saying that we wanted more
I feel like I’m falling, but I’m trying to fly
Where does all the good go?
We’re looking for answers in the highest of highs
But will we ever, ever know?

And I need you to know I’m not asking for a miracle
But if love is enough, could you let it show?
If you feel it could you let me know?
(Oh, oh) if you feel it could you let me know?
(Oh, oh) I’m not asking for a miracle

Ask for forever when the end is in sight
Showing what you want to
We’re looking for light inside an ocean of night
But will we ever see it through?”

Songwriters: Lauren Mayberry / Martin Clifford Doherty / Iain Andrew Cook / Steve Mac

Miracle lyrics © Universal Music Publishing Group

GOTV and CHVRCHES

GOTV

Busy week this week. For the first time ever, I went door-knocking with my mom. I’m hoping to get out more in the next month for Ami Wazlawik for MN State House 38B and my other favorites like Tim Walz for Governor, Amy Klobuchar, and Tina Smith for US Senate. Each of these candidates support disability rights and issues that are important to me, like affordable health care for all and protecting Medicaid.

So, get out and vote! Make your voice heard!

Chvrches

 

Another awesome concert at the Palace Theater in St. Paul. Chvrches was amazing and energetic! The wheelchair accessible seats at the Palace are great – no one can stand in front of me and block my view.IMG_20181002_205925370

As we get closer to winter, it’d be nice if they’d let those of us using wheelchairs enter by the shorter will-call line. There were really long lines and it’s easier for people in wheelchairs to get their spots before it gets too packed.

By the way, my Mom loves being able to type messages back and forth with each other on my communication device because it’s super loud and hard to hear when you’re at awesome concerts.