Dad holding Justin in hospital bed
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Time to Act in Minnesota

According to the Arc Minnesota “the 2% provider tax on health care services is the main source of funding for the Health Care Access Fund, which contributes nearly $450 million to Medical Assistance in Minnesota. The provider tax is scheduled to expire or “sunset” at the end of 2019, which would leave a hole of more… Continue reading Time to Act in Minnesota

Portrait of Justin, his brother, mom, and dad
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Hello 2019

In 2019 I want to write more about the challenges in front of me to keep moving towards independent living. It’s not easy to figure all this out and I’ll share what I find out in case it helps others in their own lives or just so everyone has a better idea of what’s involved.… Continue reading Hello 2019

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Too much social media

Social media is getting too many hours of my life, time that I could be using to read, write and get work done. Because of this, for the next couple of months I’m going to cut back my time on social media so I can focus on writing my first draft of my book and… Continue reading Too much social media

Medtronic DBS programmer and charger device
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Another typical week

Just a reminder – my typical weeks are why we need to protect Medicaid and make sure we have access to good, affordable healthcare! Speech therapy on Tuesday. Communication device fell off my chair but fortunately seems to be working just fine. My speech therapist made some brilliant changes so that I can’t accidentally hit… Continue reading Another typical week

Back of Justin in his wheelchair covered with pins for MN DFL candidates looking at yard signs for DFL candidates
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Midterms on Nov 6: Clear choice for me in Minnesota

The DFL candidates all are more supportive of disability rights and issues that impact my ability to choose where I live with the supports that I need to be included in my community. Social services that support people with disabilities to be able to live in their communities are critical. This means fighting for: Affordable… Continue reading Midterms on Nov 6: Clear choice for me in Minnesota

Ami Wazlawik and Justin Smith smiling
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GOTV and CHVRCHES

GOTV Busy week this week. For the first time ever, I went door-knocking with my mom. I’m hoping to get out more in the next month for Ami Wazlawik for MN State House 38B and my other favorites like Tim Walz for Governor, Amy Klobuchar, and Tina Smith for US Senate. Each of these candidates… Continue reading GOTV and CHVRCHES

Justin with I voted sticker on next to Vote Here sign and US Flag
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Governor’s Forum on 9/13 cancelled

I just got this cancellation yesterday for the Governor's Forum that I was looking forward to going to on Thursday. "Unfortunately, event cosponsors have had to cancel the event due to lack of confirmation from the candidates. We are still working to ensure that candidates for Minnesota Governor address and prioritize issues of importance to members of… Continue reading Governor’s Forum on 9/13 cancelled

Justin with Tim Walz
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Why it matters

Governor Candidates' Forum on 9/13 There are some key issues that impact people with disabilities that I think everyone should be thinking about as they decide who to vote for in the midterm elections. I’ve said this in previous posts and will say it again – SHOW UP! It’s important to show up now and… Continue reading Why it matters

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Vote! My letter to the editor

My First Letter to the Editor published in White Bear/Vadnais Heights Press, August 8, 2018 This coming Tuesday, August 14th, is the primary election for governor in Minnesota. As a young person living with a severe disability, I know that the next election can have a huge impact on the disability community. I am supporting… Continue reading Vote! My letter to the editor

Justin with reporter Noelle Anderson smiling
Advocacy

Adjournment

My first time as a delegate to the State Democratic Farmer Labor (DFL) Convention was definitely exciting and suspenseful! I met some amazing people and loved seeing the political process in action. Thanks to ABC-6 in Rochester for noticing my blog, reaching out, and then sending a wonderful reporter, Noelle Anderson, to interview me about… Continue reading Adjournment