Justin smiling at soccer match on computer monitor with arm raised in the air cheering a goal. AFC Wimbledon flag on wall says "we are back, we are home, we are Wimbledon"
Advocacy, Political

Remember this?

Seven weeks ago, I wrote about the fraud measures that Governor Walz is taking to audit 14 programs that support people with disabilities in Minnesota. I use 2 of the programs that are being audited – Individualized Home Supports (IHS) and Nighttime Supervision. I work with a small agency that provides these services so that… Continue reading Remember this?

Justin, young man seated in wheelchair, communication device in front of him, looking to the side as he testifies in House hearing room
Advocacy, Political

Time for change

I am having severe pain in my right knee and it is causing significant hurdles in my writing process and getting out in the community. I powered through the pain and testified at the Minnesota House Human Services Policy Committee last Tuesday about Consumer Directed Community Supports (CDCS) legislation (House File 4568 and Senate File… Continue reading Time for change

Looking up at Justin and another young man with his arm around him, smiling, Armory sign and concessions behind, curtained off area on the side
Advocacy, Political

Really?!?

Remember how I’ve been writing about the direct support staffing crisis? That we’re not paying caregivers enough so are having a really hard time trying to find or hire anyone? This story by Kirsten Swanson of KSTP, is more about the direct support crisis impact on group homes: From Group Home to Senior Living Staffing… Continue reading Really?!?

Portrait of Justin, his brother, mom, and dad
Uncategorized

Hello 2019

In 2019 I want to write more about the challenges in front of me to keep moving towards independent living. It’s not easy to figure all this out and I’ll share what I find out in case it helps others in their own lives or just so everyone has a better idea of what’s involved.… Continue reading Hello 2019