Dad holding Justin in hospital bed
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Time to Act in Minnesota

According to the Arc Minnesota “the 2% provider tax on health care services is the main source of funding for the Health Care Access Fund, which contributes nearly $450 million to Medical Assistance in Minnesota. The provider tax is scheduled to expire or “sunset” at the end of 2019, which would leave a hole of more… Continue reading Time to Act in Minnesota

Justin laying in hospital bed, brother sitting in chair with game controller
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To Err is Human

I watched a documentary, To Err is Human, with my mom and dad last weekend. Like Cal Sheridan, who is featured in the film, I also have kernicterus because of a medical error. Did you know that medical errors are the 3rd largest leading cause of death in our country? There are as many as… Continue reading To Err is Human

Portrait of Justin, his brother, mom, and dad
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Hello 2019

In 2019 I want to write more about the challenges in front of me to keep moving towards independent living. It’s not easy to figure all this out and I’ll share what I find out in case it helps others in their own lives or just so everyone has a better idea of what’s involved.… Continue reading Hello 2019

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VOTE on 11/6 if you haven’t already

This will probably be my last political post until next year. Or not. In last Tuesday’s blogpost, I said I was going to vote for Minnesota Democrats Tim Walz and Peggy Flanagan, Tina Smith, Amy Klobuchar, Betty McCollum, and Ami Wazlawik. But, I want to be clear that I am not voting for Democrats because… Continue reading VOTE on 11/6 if you haven’t already

Medtronic DBS programmer and charger device
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Another typical week

Just a reminder – my typical weeks are why we need to protect Medicaid and make sure we have access to good, affordable healthcare! Speech therapy on Tuesday. Communication device fell off my chair but fortunately seems to be working just fine. My speech therapist made some brilliant changes so that I can’t accidentally hit… Continue reading Another typical week

Justin laying in hospital bed, brother sitting in chair with game controller
Advocacy, Health, Political

On the Issue of Disability Rights: Healthcare

I have been pretty nervous about plans for repealing and replacing the Affordable Care Act (ACA). Representative Ryan’s plans for the Medicaid Block Grants and Per Capita Caps could have drastic impacts on people with disabilities, like me. To explain this, let me share my story. I had 6 surgeries within one year. I don’t… Continue reading On the Issue of Disability Rights: Healthcare