Justin, young man in his 20s seated in power wheelchair with big smile, ramp behind to a stage in the MN Capitol Rotunda
Advocacy, Political

Time to Testify

Remember how I mentioned that there is legislation being introduced at the State of MN to make improvements to the Consumer Directed Community Services (CDCS) program? The first hearing in the House Human Services Policy Committee is at 1:00 on Tuesday, 3/19/2024, and I am excited to testify in support of this bill. This issue… Continue reading Time to Testify

Looking up at Justin and another young man with his arm around him, smiling, Armory sign and concessions behind, curtained off area on the side
Advocacy, Political

Really?!?

Remember how I’ve been writing about the direct support staffing crisis? That we’re not paying caregivers enough so are having a really hard time trying to find or hire anyone? This story by Kirsten Swanson of KSTP, is more about the direct support crisis impact on group homes: From Group Home to Senior Living Staffing… Continue reading Really?!?

Accessibility (#A11y), Advocacy

ADA 32 & Me 24

The American with Disabilities Act (ADA) turned 32 years old last Tuesday. And, I turn 24 years old on this Tuesday. My entire life has been post-ADA. The ADA addressed some of the concerns like employment discrimination, access to buildings and more. There’s a long way to go though. In Minnesota, I’m finding it all… Continue reading ADA 32 & Me 24

Justin in MN Senate Hearing Room
Advocacy, Political

Bureaucracy + budget + staffing = nightmare

Enough with the waiting around for the “all about staffing” blog. I did have some health stuff I was dealing with and ended up in the emergency room a week ago. I’m doing fine now, but it seems like a good excuse for not getting this post done last week. Recap #1: The first hurdle… Continue reading Bureaucracy + budget + staffing = nightmare

Advocacy

$841 – $1332 = a math problem

I found an accessible apartment that works well enough for me and that was the first piece of the puzzle of living an independent life. Now, I have to figure out the rest of the puzzle... The math So, as some of you regulars who read my blog may know, my sole income is SSI.… Continue reading $841 – $1332 = a math problem

Justin smiling with MN Governor Walz
Accessibility (#A11y), Advocacy

Seat at the table in #OneMinnesota

On Monday, I went to the Legislative Forum sponsored by the Minnesota Council on Disability. Governor Walz and Lt. Governor Flanagan were both there - the first time that a Governor or Lt. Governor has come to this Legislative Forum. It was also great to hear from the legislators who were there to talk about… Continue reading Seat at the table in #OneMinnesota

Justin in wheelchair, dad holding Justin's foot
Uncategorized

Barriers to Inclusion Part 2: Caregivers

The system is stuck! Why aren’t Consumer Directed Community Supports (CDCS) options on a level playing field with traditional Personal Care Attendant (PCA) Services? We need to rethink the model and provide real options and choices without being penalized for choosing CDCS, even though that's the choice that provides more flexibility and choice for the… Continue reading Barriers to Inclusion Part 2: Caregivers

Uncategorized

Too much social media

Social media is getting too many hours of my life, time that I could be using to read, write and get work done. Because of this, for the next couple of months I’m going to cut back my time on social media so I can focus on writing my first draft of my book and… Continue reading Too much social media