Did it! 1st draft of my 2nd novel is done!
When I started my second book, I wanted to do this narrative as a twenty-one-year-old who is looking back on the time when she was sixteen. For the narrator, I draw upon my own experiences of having cerebral palsy, using a communication device, power wheelchair, uncontrolled movement and jerky muscles, etc. All this wrapped in a story of mystery and comedy and light.
“Until the lights die, let the story about yourself be your own personal story and no one else’s.
Until the lights die, we don’t know when we will shine. Until then, live.”
– Justin Smith
Read my earlier post about The novel
Justins for Justin
Another exciting moment this week was introducing my friend Justin Stofferahn at his State Senate District 38 Kickoff. In all the drama around the presidential caucuses and primaries, don’t forget how important your local and state races are! I’m doing what I can to help Justin get elected as our new State Senator and flip our district blue. This race matters. This election matters. It’s important for all of us to get involved – because, you guessed it – it matters!
Find out more about Justin’s campaign at JustinStofferahn.com
I am extremely excited that my friend, Justin Stofferahn, is running to be my State Senator (SD 38). I met Justin at a Walz event in 2017 and got to know him through the caucus, district convention, State DFL Convention, and in volunteering for Governor Walz and my State Representative Ami Wazlawik.
I know Justin will be a great Senator. He listens – truly listens. He made sure that I was at the table and that I was able to share the issues that mattered to me. He reaches out to make sure that people with disabilities and others are included in the process. I am confident that when he becomes my Senator, that I’ll be able to connect with him on legislation that impacts me and others with disabilities. And that he’ll not only listen, but will act.
‘Tis the season for writing more about political issues impacting people with disabilities as we near next year’s election. Start finding out now who is running for local offices – don’t just follow presidential politics. State and local politics is incredibly important and has very real impacts on people like me who need services and support to thrive in my community. Pay attention, show up and be informed!
Looking forward to adding Justin’s sign in our yard and his pin the back of my chair! #OneMinnesota
Find out more about why I think getting involved in the political process is important. Check out this blogpost with link to the Rochester ABC Channel 6 news report from the DFL State Convention: Adjournment
3 things I will always remember
- Door knocking for Ami Wazlawic – my new State Representative! I think I liked that even more than being a delegate at the State Convention. I think the parties need to think about how they’re endorsing candidates so that more people can be involved in the process.
- Spoke at Charting the C’s Conference – a lot of work but felt amazing to be the keynote speaker and to present in a couple sessions with my mom, Jennie Delisi and Kim Wee. It’s awesome to have the opportunities to share my experience with such amazing people!
- Writing my unfinished first draft of my book and my blog – I even moved my blog to WordPress which I’ve found very accessible and easy to use. To write is to be free.
Read more posts about my favorite 2018 things
Volunteering and participating in political process
VOTE on 11/6 if you haven’t already
Midterms on Nov 6: Clear choice for me in Minnesota
Midterms Part 1: People with Disabilities Vote!
Why it matters
Vote! My letter to the editor
Ready to convene
Show Up and Dance with Me!
Charting the Cs Conference
I’m here and stuff
Video blog for my latest update
Writing with WordQ (NO POLITICS, really!)
Anyone else have this problem?
This will probably be my last political post until next year. Or not.
In last Tuesday’s blogpost, I said I was going to vote for Minnesota Democrats Tim Walz and Peggy Flanagan, Tina Smith, Amy Klobuchar, Betty McCollum, and Ami Wazlawik. But, I want to be clear that I am not voting for Democrats because I favor a political party over another. I am voting for Democrats because they tend to support issues that matter to me. They support protecting Medicaid, disability rights, and healthcare.
So, here’s your job. Find out where your polling place is, research who is running for office, get out and VOTE. In Minnesota, you can use the Polling Place Finder to find out where to vote. For other states, check out Rock the Vote to find your voter information.
Our votes matter!
Here are some more posts about the issues that matter to me:
Why it matters
Vote! My letter to the editor
Ready to convene
Tax Cuts and Jobs Act
On the Issue of Disability Rights: Healthcare
The DFL candidates all are more supportive of disability rights and issues that impact my ability to choose where I live with the supports that I need to be included in my community. Social services that support people with disabilities to be able to live in their communities are critical. This means fighting for:
- Affordable healthcare and Medicaid (Medical Assistance in MN)
- Affordable, wheelchair accessible housing
- Inclusive job opportunities and education
Tim Walz has gone out of his way to come and talk to me from the first time I met him at the Organizing District and State DFL Conventions. He has made me feel that I do have a seat at the table. He supports the very services that I depend on to help me live and participate fully in my community. I am included as part of #OneMinnesota.
I also stand with Senators Amy Klobuchar and Tina Smith and Representative Betty McCollum in bringing their voices to the US Senate and House. They will help defend Medicaid which is so critical to those of us with disabilities. Cuts to Medicaid will impact me and others you may know who depend on Medicaid for support staff, medical care and equipment. They also speak up for fairness, respect, and decency for all.
My family has received countless negative attack flyers against Ami Wazlawik, who I support for State House District 38B. She is an awesome candidate who listens to people in her community and has done nothing but run a positive campaign. I’m signed up to help with door-knocking again next weekend! I know she will be there to listen to my concerns or about issues that are important to me when she’s elected to the State House. Because she is doing that now!
Issues that impact the disability community matter. Who is listening to those of us with disabilities? Who is going to fight for issues that matter to us? My vote is with Walz/Flanagan, Klobuchar, Smith, and Wazlawik.
You can learn more about the candidates and make your own choices from MPR Voter Guide or Star Tribune Election Guide.
My First Letter to the Editor published in White Bear/Vadnais Heights Press, August 8, 2018
This coming Tuesday, August 14th, is the primary election for governor in Minnesota. As a young person living with a severe disability, I know that the next election can have a huge impact on the disability community. I am supporting Congressman Tim Walz in the DFL Primary for Governor because I believe he will be able to pull people from across the state to protect Medicaid and improve education for all students across the state.
We need a Governor and Legislature that will do everything they can to protect Medicaid services that people with disabilities depend on to live in their communities. I’ll be voting for Tim Walz and Peggy Flanagan because they will work together to keep our state moving in the right direction even when faced with threats to Medicaid and other services that people with disabilities need.
Tim Walz was a teacher and knows the importance of making sure that education is inclusive and accessible for students with disabilities. Funding education, special education, and making college more affordable are important in making sure that all students are ready for the jobs of the future.
We need to elect a governor who can work productively with either party to get stuff done. The needs of the disability community do not change depending on what party is in control. Tim Walz will keep moving our Minnesota forward and make sure that those of us with disabilities are not left behind.
I’m having a pretty low-key summer. My mom and younger brother are ditching me and my dad to go spend almost 3 weeks in Germany. My brother’s been studying German since 6th grade and my mom studied for a semester in Germany a really, really, long, long time ago. Mom, could you please bring me back some World Cup Germany Futbol socks!
Other stuff happening this summer
I’m having an awesome time watching the World Cup. Thrilling. Exciting. Nail-biting.
I am a huge fan of AFC Wimbledon so have been following them online. They are a fan-owned team.
Some Medical Stuff
I just started trying out medical marijuana and will let folks know how it’s going in a month or two. The hope is to reduce pain in my knees, hamstrings, and hips and calm involuntary, jerky movement and muscle spasms. Minnesota has approved the use of medical marijuana.
Continuing to write my action-packed, mystery, romance novel. I’m on page 86. I’m going to get a bunch done when my mom and brother are on vacation.
The Minnesota Primary is coming up on August 14. I am going to volunteer for the candidates I support. If you live in Minnesota, remember to go VOTE! It’s important! If you’re not around on August 14, you can vote by mail or in person through August 13. Check out more information about voting at the Secretary of State’s website.
Some Ideas for the Future
My dad and I are going to go tour Augsburg University on Wednesday. I have been taking classes at Century College, a community college near where I live. I’ve heard really good things about Augsburg and would like to see if it might be a good fit.
Don’t forget to be awesome!