I had a special request to review this mostly true book by the authors, Lexi and Susan Haas. the year of the buttered cat is a middle grade book about Lexi’s deep brain stimulation surgeries (DBS) and yes, a buttered cat is in the book.
Never give up – GOAL!
Last Saturday, AFC Wimbledon, a third-tier fan-owned football team, beat West Ham United, a Premier League team, in the fourth round of the FA Cup. I don’t want to alienate people who support West Ham, so I am not going to talk about the game. Instead I am going to tell a personal story about… Continue reading Never give up – GOAL!
Another typical week: Part deux video
Hi all, Had a great question about how I charge my DBS stimulator last week and why I watch movies while I’m charging. So, my dad, mom, and I made a video. Here’s the thing, it’s tricky to get the charger lined up and staying in one place next to the stimulator that’s implanted in… Continue reading Another typical week: Part deux video
Another typical week
Just a reminder – my typical weeks are why we need to protect Medicaid and make sure we have access to good, affordable healthcare! Speech therapy on Tuesday. Communication device fell off my chair but fortunately seems to be working just fine. My speech therapist made some brilliant changes so that I can’t accidentally hit… Continue reading Another typical week
On the Issue of Disability Rights: Healthcare
I have been pretty nervous about plans for repealing and replacing the Affordable Care Act (ACA). Representative Ryan’s plans for the Medicaid Block Grants and Per Capita Caps could have drastic impacts on people with disabilities, like me. To explain this, let me share my story. I had 6 surgeries within one year. I don’t… Continue reading On the Issue of Disability Rights: Healthcare