Uncategorized

Top Moments of the Decade

This is not an easy list. So many things happened that could have been the most memorable of the decade. Well, there are the DBS surgeries, I think they’ve had a huge impact on not just me, but my whole family. But, I want to focus on non-medical, non-traumatic moments. April 14th, 2016 My first… Continue reading Top Moments of the Decade

Justin sitting on Mom's lap in chair next to hospital bed
Uncategorized

Never give up – GOAL!

Last Saturday, AFC Wimbledon, a third-tier fan-owned football team, beat West Ham United, a Premier League team, in the fourth round of the FA Cup. I don’t want to alienate people who support West Ham, so I am not going to talk about the game. Instead I am going to tell a personal story about… Continue reading Never give up – GOAL!

Uncategorized

Another typical week: Part deux video

Hi all, Had a great question about how I charge my DBS stimulator last week and why I watch movies while I’m charging. So, my dad, mom, and I made a video. Here’s the thing, it’s tricky to get the charger lined up and staying in one place next to the stimulator that’s implanted in… Continue reading Another typical week: Part deux video

Medtronic DBS programmer and charger device
Uncategorized

Another typical week

Just a reminder – my typical weeks are why we need to protect Medicaid and make sure we have access to good, affordable healthcare! Speech therapy on Tuesday. Communication device fell off my chair but fortunately seems to be working just fine. My speech therapist made some brilliant changes so that I can’t accidentally hit… Continue reading Another typical week