Justin smiling at soccer match on computer monitor with arm raised in the air cheering a goal. AFC Wimbledon flag on wall says "we are back, we are home, we are Wimbledon"
Advocacy, Political

Remember this?

Seven weeks ago, I wrote about the fraud measures that Governor Walz is taking to audit 14 programs that support people with disabilities in Minnesota. I use 2 of the programs that are being audited – Individualized Home Supports (IHS) and Nighttime Supervision. I work with a small agency that provides these services so that… Continue reading Remember this?

Justin, a young man in wheelchair smiling with a look that says "IReady to go!", name tags and seats around a Senate hearing table, American flag
Advocacy, Political, Uncategorized

This happened…

Last Friday, I was contacted by Representative Betty McCollum's Office to be part of a panel that happened yesterday to talk about the impacts of HR1 on Medicaid and our healthcare system. I, of course, said "yes, I'd love the opportunity to share my story." Because, that's what I always do. The thing is, it's… Continue reading This happened…

Quote by Ida B. Wells on wall: "The way to right wrongs is to turn the light of truth upon them."
Advocacy, Political, Uncategorized

Make Good Trouble

I went to the Good Trouble Lives On Twin Cities rally in Minneapolis on July 17, 2025. I wasn't going to go at first, but then found out my friends, Judy and Raven Moe were going to be speaking, so changed my mind super quick! Honestly, it's been a rough month finding out that Medicaid… Continue reading Make Good Trouble

Newspaper that says State & Region, More Tightening Likely for State's Disability Services with mom holding hand out to her adult daughter who is in a wheelchair
Advocacy, Political

Newsy stuff

Do something! Write a letter to the editor, go to a rally (yes, I was at the No King's March in St. Paul on Saturday), call your elected officials at all levels (County Commissioners will be feeling these cuts!), talk to your friends, amplify and share our stories to make sure people know what's going on. Thanks!

Health, Reviews

“Ages come and pass”

I am at the beginning of the fourth book in Robert Jordan's epic fantasy series, The Wheel of Time. At the beginning of each book, so far, these have been the first two sentences. And they are my favorite. “The Wheel of Time turns, and Ages come and pass, leaving memories that become legend. Legend… Continue reading “Ages come and pass”

Concert stage
Accessibility (#A11y), Music

There will be sorrow

Saw the surgeon last week to talk about what’s next for my toes. Essentially, my muscle tone can get so strong that it’s bending and curving my toes on my right foot. I had surgery for both of my big toes about 6 years ago for this. The plan is to have a surgery where… Continue reading There will be sorrow

Justin laying in hospital bed, brother sitting in chair with game controller
Uncategorized

To Err is Human

I watched a documentary, To Err is Human, with my mom and dad last weekend. Like Cal Sheridan, who is featured in the film, I also have kernicterus because of a medical error. Did you know that medical errors are the 3rd largest leading cause of death in our country? There are as many as… Continue reading To Err is Human

Justin smiling with MN Governor Walz
Uncategorized

What is up in my world?

Celebrate! Hey, how awesome was last night’s Governor Walz and Lieutenant Governor Flanagan Inaugural Celebration?  Super AWESOME! Fun music, dancers, and so much excitement! Here are some of the picture highlights. Congratulations to Governor Walz and Lieutenant Governor Flanagan! I loved being a delegate for them in the caucus, organizing unit convention, and at the… Continue reading What is up in my world?