Frequently asked and unasked questions about writing, social media, etc.

Are you ever going to get something published?

Maybe I will, might take a while to get this book published.  I have started editing and that can take a while. This is technically my second book. I trashed my first book.

Writing anything else?

No, I’ve started outlining the next one and I am focusing all attention on editing the book I’ve written. I’ll let you know when I will start drafting this one.

What music do you listen to when you write?

I like to listen to music and groups that inspire me, make me dance, make me think, or make me feel connected.

Some of my favorites include: Billie Eilish, Maggie Rogers, FINNEAS, Brandi Carlile, Imagine Dragons, Vampire Weekend, Lumineers, Interrupters, Haim, The Bad Man, Sara Bareilles, and lots more.

Justin smiling,Word document on computer screen says

How do you write?

With my right middle finger on a Clevy keyboard with WordQ word prediction software. Check out the video.  I use Microsoft Read Aloud to read back my work aloud when I edit what I’ve written in a Word document. It highlights words as they’re read aloud which helps me with visual tracking.

Check out my YouTube video that shows how I write. I made this when getting ready to give the keynote speech at the Charting the Cs Conference a two years ago.

Why did you want to write this book narrated by a girl with cerebral palsy?

Ok, part of my decision to write this book with a narrator who is a young woman who has the same disability I do was appealing to me because it doesn’t matter what your gender is, what your economic status is, what your race is, and what your sexuality is. Writing is about empathy and being able to see the world from other human experiences.

What genre was your first book that you say was the worst?

My first one was a science fiction/romance novel (or that is what I want to call that).

What does your second book have that the first one didn’t have?

Realistic stuff. I wanted to draw from my own experiences regarding deep brain stimulation (DBS) and having a physical disability. The dialogue for the narrator primarily happens through her communication device. I am able to share a bit more of everyday frustrations through this character than I do in my real life. This book feels more honest to me.

Why don’t you post on social media more often?

Excellent question. One reason is that I don’t have a phone or easy way to post on social media when I’m out doing stuff away from my computer. If I’m out with my mom, we’ll write posts together and then she’ll post on Twitter or Facebook and tag me, always with my permission first! Never tag your kids unless you have their permission! Even when they’re adults! Here’s an example of how my mom and I partner up.

 

I should be posting a lot more than I am and we’re looking into options for phone access, although it’s tricky because physically, I can’t use a phone and we haven’t figured out a good way to use with my somewhat old communication device. And with the amount of time it takes me to type in my communication device, I’d end up missing out on a lot of living if I’m spending all my time typing a short tweet or post.

Second reason is that social media can be a huge time suck so when I’m at home, a lot of times, I’d rather be writing or working on my books, reading books, or watching YouTube.

That’s it for today. I’m probably laying low for a while. I don’t do well with viruses.

All best – Justin

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Top Moments of the Decade

This is not an easy list. So many things happened that could have been the most memorable of the decade. Well, there are the DBS surgeries, I think they’ve had a huge impact on not just me, but my whole family. But, I want to focus on non-medical, non-traumatic moments.

April 14th, 2016

My first post was published on justinsmithwrites.blogspot.com. It was part of a school assignment, but don’t hold me to that, and I just kept writing after the class was done. I love sharing life as I live it in my new and improved WordPress blog.

Graduation

I gave the graduation speech that same year and well, I’ll leave links to the video and the blog post down below.

Writing the first book

I have not read it since trashing it. It has never been my priority to get it out in the hands of the readers, not like this novel about a teen girl who has CP. I proved to myself that if I put my mind and heart into something, I can get it done.

April 2019

I began writing this beautiful book and I like this narrator and I like the characters who I have gotten to know.

Little moments

My favorite moment was the little moments. The hour before the first DBS surgeries when I was put on my mom’s lap, to the moments I had in school, trip to Boston with my WBUUC Youth Group, nerf sword fights with my brother, baseball games with my dad (Twins, Chicago, St. Louis, Cleveland, Milwaukee, Toronto), reading the book Paper Towns and being stopped dead by the last paragraph, and to the moment when I decided that my current book might be done by Valentine’s Day.

Here is to the next ten years. Happy New Year’s and New Decade!

Looking Towards the Future High School Graduation Speech

The Interrupters up close

Amazing concert on Wednesday at the Varsity Theater! Can’t even describe how awesome this concert was! The pictures say it all – this band is energizing and exciting. Justin and dad in front of theater marquis for sold out Interrupters April 3After the last song, the band threw t-shirts, drumsticks, guitar picks, and sheet music out to the crowd. The lead singer, Aimee, saw me and brought me a hat! And I got a hug – after she asked if it was okay to give me a hug! It’s always good to ask!

You’ll never believe this – the manager noticed us and asked if we’d like passes to meet the band after the concert. I still can’t believe it!

We hung out while the crowd left. And then got to meet the band – who by the way are incredibly nice and cool! They didn’t know it, but it’s going to be a rough several months for me after my foot surgery in 3 weeks. This concert and meeting them, is going to make it easier to go through the rough times. Thanks Aimee, Kevin, Justin and Jesse! Never underestimate the impact you have on people who are going through hard times.

Fight like a title holder 
Stand like a champion
Live like a warrior
And never let ’em break you down

Title Holder YouTube video

Finally, the Varsity Theater in Minneapolis was very accessible for me. After getting our tickets sorted out, we went to the reserved spot that was right up front to the left of the stage. We didn’t check out the accessible bathroom so can’t report on that. My chair elevates so I raised it up to standing height and it was amazing to be so close to the stage. The security guys were awesome – gave us water and earplugs and were really nice.

Interrupters on stage

Can’t wait to see the Interrupters again. Maybe Duluth in July??? Hopefully am recovered from surgery by then!

Find out more about the Interrupters and their concert tour on the Interrupters website.

Justin and Kris in concert crowd

To Err is Human

I watched a documentary, To Err is Human, with my mom and dad last weekend. Like Cal Sheridan, who is featured in the film, I also have kernicterus because of a medical error. Did you know that medical errors are the 3rd largest leading cause of death in our country? There are as many as 440,000 preventable deaths every year. Far more than that are living with the long-term impacts or injuries from medical errors. For me, it means severe cerebral palsy, auditory neuropathy, visual tracking difficultiesBlack and white photo of dad holding baby Justin, and some messed up toes. Had my newborn jaundice been tested and treated in time, I may have had a very different life. But, it wasn’t – and I don’t have that different life.

Watch this documentary and find out more about what we can do to improve the medical system so that it’s safer for all of us. We NEED to do this!

Surgery

Speaking of medical stuff, my toes surgery is on April 29th  with a night or two in the hospital. My mom is going to write a guest post after to let everyone know how I’m doing. I’ll have surgery on both big toes with a couple months’ recovery. Hoping for relief from the toe-pocalypse although I also know that surgery and recovery will mean it’s going to get worse before it gets better. Foot xray showing bent big toe

Interrupters

Until then on to crazy fun April starting with Interrupters concert tomorrow night!!! Favorite songs: She’s Kerosene and Got Each Other (featuring Rancid)

We don’t have much but we’ve got each other!