Justin, young man in his 20s seated in power wheelchair with big smile, ramp behind to a stage in the MN Capitol Rotunda
Advocacy, Music, Political

Ready to go

Legislative Session coming up Last year, I appealed the self-directed budget I receive that helps pay for my direct support staff and some other things not covered by Medical Assistance. This funding makes it possible for me to live independently with the care I need. The problem is, it doesn’t cover all of the staffing… Continue reading Ready to go

Screenshot of weather forecast on Google Chrome showing temps from -18 to 20 below Sun, Mon, and -7 by next Sunday in Celsius
Advocacy, Health, Music, Sports

Hibernating

It’s finally winter in Minnesota so I’m hibernating this week when temps are going to be below zero Fahrenheit. For my friends in other parts of the world, that would be -18 to -20 Celsius. Even colder with the wind chill! I had fun presenting as part of a panel to 3rd year medical students… Continue reading Hibernating

Reviews

Fantasy escapes

These books are all fantasy I read this year and since I love unique spins on books, I give you my top three fantasy books in no particular order. Fourth Wing: DRAGONS AND PEOPLE WITH DISABILITIES, CHECK! I want to say that this book is definitely not for young eyes. This book by Rebecca Yarros… Continue reading Fantasy escapes

The Interrupters on stage, purple lighting, crowd
Uncategorized

Concert Road Trip!

Yes, I am someone who loves The Interrupters so much, that I actually put off getting pins out of toes and cast off for a whole extra week so that I did not miss seeing the Interrupters in Green Bay, WI! Road TRIP! Last Thursday, my parents and I drove across Wisconsin and saw The… Continue reading Concert Road Trip!

Concert stage
Accessibility (#A11y), Music

There will be sorrow

Saw the surgeon last week to talk about what’s next for my toes. Essentially, my muscle tone can get so strong that it’s bending and curving my toes on my right foot. I had surgery for both of my big toes about 6 years ago for this. The plan is to have a surgery where… Continue reading There will be sorrow

Smiling Justin in front of stage
Health

Toe-mageddon 2: The sequel

Seven weeks ago, I started to feel pain in my right little toe. I have athetoid cerebral palsy and that does mean I bump toes into equipment and stuff so thought I maybe just wacked it on something. But, it’s only gotten worse and is now at a constant six out of ten pain scale.… Continue reading Toe-mageddon 2: The sequel

Justin in wheelchair in front of word wall of literary words such as wordsmith, essayist, comedian, scriptwriter, novelist, poet, and quote "Noble words coming. Look out. Could you try your hand at it you..." from James Joyce, Ulysses.
Accessibility (#A11y), travel, Writing

Random post of random thoughts

Writer's life: currently at 99k words I'm almost DONE with my last round of edits before betas. Not much time for blogging. Dream trip is DONE! I'm done writing about my dream trip. I was going to write about some stuff that didn't work well for me on the trip. I had an amazing trip… Continue reading Random post of random thoughts