Legislative Session coming up Last year, I appealed the self-directed budget I receive that helps pay for my direct support staff and some other things not covered by Medical Assistance. This funding makes it possible for me to live independently with the care I need. The problem is, it doesn’t cover all of the staffing… Continue reading Ready to go
Author: justins989
Hibernating
It’s finally winter in Minnesota so I’m hibernating this week when temps are going to be below zero Fahrenheit. For my friends in other parts of the world, that would be -18 to -20 Celsius. Even colder with the wind chill! I had fun presenting as part of a panel to 3rd year medical students… Continue reading Hibernating
Fantasy escapes
These books are all fantasy I read this year and since I love unique spins on books, I give you my top three fantasy books in no particular order. Fourth Wing: DRAGONS AND PEOPLE WITH DISABILITIES, CHECK! I want to say that this book is definitely not for young eyes. This book by Rebecca Yarros… Continue reading Fantasy escapes
Cast Off for FA Cup & NaNo
My cast is off and pins are out just in time for FA Cup and NaNoWriMo. I'm back to wearing a regular shoe and just the typical healing and soreness after getting pins yanked out and having my leg in a cast for 8 weeks. Way to go Wimbledon on 5-1 win today for the… Continue reading Cast Off for FA Cup & NaNo
Concert Road Trip!
Yes, I am someone who loves The Interrupters so much, that I actually put off getting pins out of toes and cast off for a whole extra week so that I did not miss seeing the Interrupters in Green Bay, WI! Road TRIP! Last Thursday, my parents and I drove across Wisconsin and saw The… Continue reading Concert Road Trip!
Recovering
Made it through surgery and I'm not going to lie, it's been a rough 10 days. The first part was a lot of the post-surgery pain and now I'm in pain from the cast. It's hitting the tendon on the back of my knee and causing some issues. I'm going to go get it checked… Continue reading Recovering
The wheel
i have been reading The Wheel of Time series by Robert Jordan and am on Book 2 of fourteen.  this is a time of pain in my life. i don’t have energy to write the things that I want to write and love. my foot surgery is this Thursday, 9/7/23 – "the wheel weaves what… Continue reading The wheel
There will be sorrow
Saw the surgeon last week to talk about what’s next for my toes. Essentially, my muscle tone can get so strong that it’s bending and curving my toes on my right foot. I had surgery for both of my big toes about 6 years ago for this. The plan is to have a surgery where… Continue reading There will be sorrow
Toe-mageddon 2: The sequel
Seven weeks ago, I started to feel pain in my right little toe. I have athetoid cerebral palsy and that does mean I bump toes into equipment and stuff so thought I maybe just wacked it on something. But, it’s only gotten worse and is now at a constant six out of ten pain scale.… Continue reading Toe-mageddon 2: The sequel
Random post of random thoughts
Writer's life: currently at 99k words I'm almost DONE with my last round of edits before betas. Not much time for blogging. Dream trip is DONE! I'm done writing about my dream trip. I was going to write about some stuff that didn't work well for me on the trip. I had an amazing trip… Continue reading Random post of random thoughts
