3…2…1 Action

Follow up to last week’s post about Google Live Transcribe app for Android. I had another doctor’s visit with my Movement Disorder Team on Thursday, so tried out Google Live Transcribe again. We made a video while waiting for the doctors to come in to the room. “Huh, you say? Not a video!” Yes, a video! My mom is the co-star for this one and dad is the camera person.

Tips for using auto-transcription apps:

  • 1 person talk at a time
  • Speak slowly and clearly
  • Have someone who does not have hearing issues also monitor the captions so they can correct things when captions are wrong

Auto-transcription is not perfect. Without someone who can hear better monitoring for accuracy, I would miss stuff. Like this time, the doctor was saying something and one of the words was “actually.” Google Live Transcribe thought he said “sexually.” This could lead to some big misunderstandings. My mom backed us all up so that I understood what he was actually saying.

Like a lot of stuff in my life and with assistive technologies, it’s a work in progress. This kind of tech will be helpful for some of us with hearing loss in some situations but not all. This works okay for me because we have just a couple of us in the room and I have someone who is reading the captions along with me to let me know when it messes up. If I’m in a college lecture, event like Disability Day at the Capitol, presentation, or meeting, then I’d prefer to have CART captioning. It’s more accurate.

Discoveries

The toes report

Met with the orthopedic specialist on Friday. Surgery in the next month or two as soon as it can be scheduled. Basically, the muscle tone and uncontrolled muscle spasms in my feet have caused my big toes to be just shy of dislocated. I have really strong muscles! And as I’ve mentioned before, it’s as if all of my muscles have their own individual brains, none of which listen to the brain in my head.

Foot xray showing bent big toe

I’m going to have surgery on both of my big toes as the doctor thought it was just a matter of time until my right toe gets as bad as my left. I’ll be in the hospital for a night or two after the surgery. The whole thing involves cutting tendons to my big toes, shaving off some bone on the knuckle parts of my toes, pins for 6-8 weeks. And then I’ll have another quick sedated surgery to remove the pins.

What else to say? It’s going to probably be a long, painful couple of months. Hopefully, it’ll be less painful once I get through it all.

Which brings me to…

Auto-captions

I’ve discovered over the past several years that my auditory neuropathy (AN) and hearing loss makes it difficult to follow conversations. CART (real-time) captions and closed-captioning helps me better understand what’s being said. For every day conversations or doctor visits, that’s not really an option.

Google Live Transcribe icon

My mom’s coworker let her know about Google Live Transcribe app for Android and we’ve been trying that out for everyday conversations. We also used it at my visit to the orthopedic specialist on Friday. It is amazing.

What do I like about it?

  • The text size can be enlarged so I can see it. I have visual tracking issues so larger text helps me read more easily.
  • The auto-captioning with Live Transcribe is pretty accurate. My mom reads along and points out when something is inaccurate. Like when the doctor said 6 to 8 weeks but Live Transcribe wrote out 66 instead. 66 weeks of pins in my toes is very different than 6 to 8 weeks.
  • Being able to read what was being said helped me fill in the gaps for when the discussion was sounding like a statick-y radio, which is what happens often with my AN.

Which brings me to…

My Book

Editing is long, hard work!

 

Random thoughts

Just how accessible are video games when you only have use of one finger and a joystick mouse?

I started playing Fortnite two weeks ago with one of my personal care attendants (PCA). Yes, my strategy is to be a pacifist, just like my favorite author and vlogger, John Green, and camp out in bushes until most of the other players are dead.

So far, I have noticed that the game isn’t very accessible for me because it relies on a lot of keyboarding to be able to navigate my character around the virtual world. I rely on my two-handed PCA who can keep up with the keystrokes in a fast-moving game to move our character to the safest looking bush inside the eye of the storm…and I have one finger to target and shoot. We’ve finished second place three times. But, my character is a pacifist, so I usually end up dying in the end. Wonder what would happen if the other final character refused to shoot me? Would there be peace in our time?

Music videos with captions

One of my favorite bands, Imagine Dragons, has a lot of music videos with captions. I use CC for everything that I watch and music videos typically aren’t captioned. So, it’s really hard for me to understand the words of the songs. Thanks Imagine Dragons and other musical groups who caption their music videos. Can’t wait until someone starts providing real-time captioning at rock concerts. That would be awesome!

Check it out: Natural by Imagine Dragons

Medical Marijuana update

I’m taking a blend of THC/CBD oral suspension before bed. I have noticed this is helping me sleep much better. With the medical marijuana, I’m able to fall asleep and stay asleep without waking up as often during the night. My parents are enthusiastic not to be getting up every hour or two to readjust me at night.

I was also taking a mostly CBD oral suspension in the morning to help with my jerky movements and pain in my hips, knees and feet. I tried that one for a bit over a month and have taken a break from it. I’m not sure if it was the CBD or if maybe it was just hot weather, but I was feeling very low energy and tired during the day. It was kind of helping with the pain but not a lot. I may try again in the fall, try adjusting amounts, and see if it makes a difference or if I think it’s making me too tired.

edX class

In a previous post, I wrote about taking a break from college. I have started taking a Public Speaking course through edX. I love that the lecture is captioned and has a transcript. The site is easy to navigate and very accessible for me.

Have an awesome rest of your summer!