Frequently asked and unasked questions about writing, social media, etc.

Are you ever going to get something published?

Maybe I will, might take a while to get this book published.  I have started editing and that can take a while. This is technically my second book. I trashed my first book.

Writing anything else?

No, I’ve started outlining the next one and I am focusing all attention on editing the book I’ve written. I’ll let you know when I will start drafting this one.

What music do you listen to when you write?

I like to listen to music and groups that inspire me, make me dance, make me think, or make me feel connected.

Some of my favorites include: Billie Eilish, Maggie Rogers, FINNEAS, Brandi Carlile, Imagine Dragons, Vampire Weekend, Lumineers, Interrupters, Haim, The Bad Man, Sara Bareilles, and lots more.

Justin smiling,Word document on computer screen says

How do you write?

With my right middle finger on a Clevy keyboard with WordQ word prediction software. Check out the video.  I use Microsoft Read Aloud to read back my work aloud when I edit what I’ve written in a Word document. It highlights words as they’re read aloud which helps me with visual tracking.

Check out my YouTube video that shows how I write. I made this when getting ready to give the keynote speech at the Charting the Cs Conference a two years ago.

Why did you want to write this book narrated by a girl with cerebral palsy?

Ok, part of my decision to write this book with a narrator who is a young woman who has the same disability I do was appealing to me because it doesn’t matter what your gender is, what your economic status is, what your race is, and what your sexuality is. Writing is about empathy and being able to see the world from other human experiences.

What genre was your first book that you say was the worst?

My first one was a science fiction/romance novel (or that is what I want to call that).

What does your second book have that the first one didn’t have?

Realistic stuff. I wanted to draw from my own experiences regarding deep brain stimulation (DBS) and having a physical disability. The dialogue for the narrator primarily happens through her communication device. I am able to share a bit more of everyday frustrations through this character than I do in my real life. This book feels more honest to me.

Why don’t you post on social media more often?

Excellent question. One reason is that I don’t have a phone or easy way to post on social media when I’m out doing stuff away from my computer. If I’m out with my mom, we’ll write posts together and then she’ll post on Twitter or Facebook and tag me, always with my permission first! Never tag your kids unless you have their permission! Even when they’re adults! Here’s an example of how my mom and I partner up.

 

I should be posting a lot more than I am and we’re looking into options for phone access, although it’s tricky because physically, I can’t use a phone and we haven’t figured out a good way to use with my somewhat old communication device. And with the amount of time it takes me to type in my communication device, I’d end up missing out on a lot of living if I’m spending all my time typing a short tweet or post.

Second reason is that social media can be a huge time suck so when I’m at home, a lot of times, I’d rather be writing or working on my books, reading books, or watching YouTube.

That’s it for today. I’m probably laying low for a while. I don’t do well with viruses.

All best – Justin

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Tearing at the seams

Perfect paradise, tearing at the seams.

– Imagine Dragons

One of my favorite bands, Imagine Dragons, has this line in Bad Liar. When the song came out, I was in a place of pain and this helped me forget. This was actually last fall and the pain has been at a steady 6 with jumps to 9 out of 10 for so long. Just to recap –have seen multiple specialists over the past 5 months figuring out what to do.

My surgery is now two weeks away on April 26th. I’ll have two months of pins in both of my big toes and recovery with lots of lying around in bed, watching Netflix, Amazon Prime and On Demand. For the next couple weeks, I’ll be putting together my playlist for the hospital – the music that makes me feel strong!

I am going to have my mom post as soon as she can after my surgery to let everyone know how I’m doing. Justin smiling with concert crowd behind

So look me in the eyes
Tell me what you see
Perfect paradise
Tearing at the seams
I wish I could escape it
I don’t want to fake it
I wish I could erase it
Make your heart believe

-Bad Liar by Imagine Dragons

 Bad Liar on YouTube How awesome that it’s captioned!

Previous posts about toe-mageddon

Random thoughts

Just how accessible are video games when you only have use of one finger and a joystick mouse?

I started playing Fortnite two weeks ago with one of my personal care attendants (PCA). Yes, my strategy is to be a pacifist, just like my favorite author and vlogger, John Green, and camp out in bushes until most of the other players are dead.

So far, I have noticed that the game isn’t very accessible for me because it relies on a lot of keyboarding to be able to navigate my character around the virtual world. I rely on my two-handed PCA who can keep up with the keystrokes in a fast-moving game to move our character to the safest looking bush inside the eye of the storm…and I have one finger to target and shoot. We’ve finished second place three times. But, my character is a pacifist, so I usually end up dying in the end. Wonder what would happen if the other final character refused to shoot me? Would there be peace in our time?

Music videos with captions

One of my favorite bands, Imagine Dragons, has a lot of music videos with captions. I use CC for everything that I watch and music videos typically aren’t captioned. So, it’s really hard for me to understand the words of the songs. Thanks Imagine Dragons and other musical groups who caption their music videos. Can’t wait until someone starts providing real-time captioning at rock concerts. That would be awesome!

Check it out: Natural by Imagine Dragons

Medical Marijuana update

I’m taking a blend of THC/CBD oral suspension before bed. I have noticed this is helping me sleep much better. With the medical marijuana, I’m able to fall asleep and stay asleep without waking up as often during the night. My parents are enthusiastic not to be getting up every hour or two to readjust me at night.

I was also taking a mostly CBD oral suspension in the morning to help with my jerky movements and pain in my hips, knees and feet. I tried that one for a bit over a month and have taken a break from it. I’m not sure if it was the CBD or if maybe it was just hot weather, but I was feeling very low energy and tired during the day. It was kind of helping with the pain but not a lot. I may try again in the fall, try adjusting amounts, and see if it makes a difference or if I think it’s making me too tired.

edX class

In a previous post, I wrote about taking a break from college. I have started taking a Public Speaking course through edX. I love that the lecture is captioned and has a transcript. The site is easy to navigate and very accessible for me.

Have an awesome rest of your summer!