In 2019 I want to write more about the challenges in front of me to keep moving towards independent living. It’s not easy to figure all this out and I’ll share what I find out in case it helps others in their own lives or just so everyone has a better idea of what’s involved.… Continue reading Hello 2019
Category: Uncategorized
2018, see ya
3 things I will always remember Door knocking for Ami Wazlawic – my new State Representative! I think I liked that even more than being a delegate at the State Convention. I think the parties need to think about how they’re endorsing candidates so that more people can be involved in the process. Spoke at… Continue reading 2018, see ya
Hope. Grace. Kindness.
On Monday, I got to go hang out and volunteer with my young friend, Roa, who also has cerebral palsy. He’s in elementary school and reminds me of me when I was that age. I remember playing hide and seek in those same hallways during recess when I was his age. In the winter, when… Continue reading Hope. Grace. Kindness.
Random thoughts about feet & stuff
These past two weeks, I’ve been having thoughts on my feet and stuff. My feet are a pain. And because of that, I am in pain. It’s a non-stop hard-to-be-distracted-from kind of pain. My mom asked me what number yesterday. Because that’s what my mom does. I said 5 to 7. I’m waiting to see… Continue reading Random thoughts about feet & stuff
Too much social media
Social media is getting too many hours of my life, time that I could be using to read, write and get work done. Because of this, for the next couple of months I’m going to cut back my time on social media so I can focus on writing my first draft of my book and… Continue reading Too much social media
Writing with WordQ (NO POLITICS, really!)
As some of you may know, I’m writing a novel that is currently 130 pages long and going. I couldn’t have written this much independently without word prediction. I am using WordQ, a software that speeds up my writing process a ton.WordQ is a word prediction software I had tried when I was in later… Continue reading Writing with WordQ (NO POLITICS, really!)
VOTE on 11/6 if you haven’t already
This will probably be my last political post until next year. Or not. In last Tuesday’s blogpost, I said I was going to vote for Minnesota Democrats Tim Walz and Peggy Flanagan, Tina Smith, Amy Klobuchar, Betty McCollum, and Ami Wazlawik. But, I want to be clear that I am not voting for Democrats because… Continue reading VOTE on 11/6 if you haven’t already
Another typical week: Part deux video
Hi all, Had a great question about how I charge my DBS stimulator last week and why I watch movies while I’m charging. So, my dad, mom, and I made a video. Here’s the thing, it’s tricky to get the charger lined up and staying in one place next to the stimulator that’s implanted in… Continue reading Another typical week: Part deux video
Another typical week
Just a reminder – my typical weeks are why we need to protect Medicaid and make sure we have access to good, affordable healthcare! Speech therapy on Tuesday. Communication device fell off my chair but fortunately seems to be working just fine. My speech therapist made some brilliant changes so that I can’t accidentally hit… Continue reading Another typical week
Midterms on Nov 6: Clear choice for me in Minnesota
The DFL candidates all are more supportive of disability rights and issues that impact my ability to choose where I live with the supports that I need to be included in my community. Social services that support people with disabilities to be able to live in their communities are critical. This means fighting for: Affordable… Continue reading Midterms on Nov 6: Clear choice for me in Minnesota
