Justin reaching out to air-fist bump with Senator Durenberger
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Barriers to Inclusion Part 3: Employment

In the 2018 fiscal year, 16 percent of Minnesotans with disabilities who received state services worked in the community alongside people without disabilities.  Chris Serres, Star Tribune, 3/16/19 How is this real? That number needs to be a hell of a lot higher than 16%. I am NOT one of the 16% by the way… although I… Continue reading Barriers to Inclusion Part 3: Employment

Justin in wheelchair, dad holding Justin's foot
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Barriers to Inclusion Part 2: Caregivers

The system is stuck! Why aren’t Consumer Directed Community Supports (CDCS) options on a level playing field with traditional Personal Care Attendant (PCA) Services? We need to rethink the model and provide real options and choices without being penalized for choosing CDCS, even though that's the choice that provides more flexibility and choice for the… Continue reading Barriers to Inclusion Part 2: Caregivers

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Barriers to inclusion

Today, Chris Serres, reporter for the Minneapolis Star Tribune, wrote an excellent article about how Minnesotans with disabilities are fighting barriers to inclusion and unfilled promises. I love seeing Chris Serres’ articles because he gets it. He’s able to tell the world about what it’s like to try to navigate this system and what happens… Continue reading Barriers to inclusion

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The scary part of editing

Why did I write this book? It seemed like a good idea at the time I started writing, but now that I am editing, let us just say that there are moments when I feel like the book should be thrown into the garbage can and then the garbage can should be thrown into the center… Continue reading The scary part of editing

Justin sitting on Mom's lap in chair next to hospital bed
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Never give up – GOAL!

Last Saturday, AFC Wimbledon, a third-tier fan-owned football team, beat West Ham United, a Premier League team, in the fourth round of the FA Cup. I don’t want to alienate people who support West Ham, so I am not going to talk about the game. Instead I am going to tell a personal story about… Continue reading Never give up – GOAL!

Justin smiling with MN Governor Walz
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What is up in my world?

Celebrate! Hey, how awesome was last night’s Governor Walz and Lieutenant Governor Flanagan Inaugural Celebration?  Super AWESOME! Fun music, dancers, and so much excitement! Here are some of the picture highlights. Congratulations to Governor Walz and Lieutenant Governor Flanagan! I loved being a delegate for them in the caucus, organizing unit convention, and at the… Continue reading What is up in my world?